We are back at home now. They gave Neal medicine for his stomach. Hopefully he will be able to eat so that he gets some energy. Other than dialysis he has not left the house since getting out of the hospital 3 weeks ago and he is asleep all of the time. We are supposed to be going out for Matt's birthday tonight and he said he may go as well. We will see how he feels.
Matt mentioned it and I am not sure if anyone else can figure it out, but the clock on my posts is not accurate. I have no clue how to fix it. Whatever time the post says add about 3 hours.
Is anyone out there? Leslie, all of our mom's (Matt, Leslie, Ryan and mine) and Jen appear to be the only ones reading! Feel free to leave a post whether it be a hello, a joke or whatever so we know you are out there.
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Tippy and Luke when I was recovering
College Graduation 2001
Neal's dialysis center (aka the machine that keeps him alive)
Neal hooked up to the machine
Neal's new ride - better than the Festiva idea
The old ladies
The National Kidney Foundation estimates that 350,000 people in the US have end-stage renal disease and about 67,000 people die of kidney failure every year. In the year 2000, 47,000 people in the US were waiting for a kidney transplant. The lack of organs available for transplantation is a serious problem. By signing a donor card, an individual indicates their wish to be a donor. It is important to share your wishes with your next of kin as they will be asked prior to a donation.
NKF WALK
Our newest personalized license plate says it all...
Other places of interest. Or not.
Kothe 5K schedule
- Memorial Day 5K Time 57:53
- Transplant Games July 13th Pittsburgh Time 47:22
- Dash For Donation 5k July 26th Downtown Columbus 52:47
Neal's Running Log
Is Daddy ok?
Tippy and Luke when I was recovering
College Graduation 2001
Neal's dialysis center (aka the machine that keeps him alive)
Neal hooked up to the machine
Neal's new ride
Neal's new ride - better than the Festiva idea
The old ladies
About Me
- donatelife
- Columbus, Ohio, United States
- Neal was diagnosed with end stage renal disease at the age of 18. He was put on the transplant list and received a transplant after 3 years on peritoneal dialysis. He received a cadaver kidney that had been on ice for quite some time. The kidney did not begin working immediately. The doctor felt the life of the kidney would be 8-10 years. Neals' transplant rejected in late November of 2006 (a life just over 8 years). Since then he has been on hemodialysis 3 days a week for 4 hours each time. Due to Neal's young age, the doctor encouraged him to find a live donor. A live donor transplant can last almost twice the time of a cadaver transplant and could occur quickly, rather than waiting for the cadaver transplant. Unfortunately his immediate family members are not matches. Luckily a good friend was a match and began the testing process. Neal and Michele met Ryan in 1998. Vacations, birthdays, weddings and soon to be births have been shared between the couples. Many people spend their lives searching for friends like this.
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8 comments:
Wanted to let you know I am out there and keeping up-to-date on your progress. Let me know if you need anything at all (and I mean that - don't hesitate to ask). You are all in my thoughts. Keep on truckin' (whether in a Festiva or a PIMP limo)!
Jen
Noelle and I are reading this regularly, so again (I know, there's a line) if you guys need/want anything, let us know. Ryan and Leslie -- if you have any questions about having a baby, and are interested in the perspective of two people who just went through it (and were completely clueless about it...and still are completely clueless about it), we'd be happy to share.
And I'm not good with jokes, unless we're playing that state up north. That's why I stick with Sahara-like sarcasm. No set-up involved, no punchline to massacre...and it always keeps people on their toes.
Jim
We are here, sending good vibes your way. Hopefully you are getting them!
Let me know what you need. I'll bring the little man over on Saturday to cut your grass. If you'd like me to make a few dinners, just let me know.
Stacy
Steve and I have been thinking about you guys and are here for you if you need anything at all. This blog is such a great way to share support and even though we dont see each other all the time you are always in our thoughts. Neal, Michele, Ryan and Leslie, let us know if there is anything we can do to help!!!
Erica & Steve
I am out here and just wanted you to know that I appreciate the regular updates. Hope that Neal has been able to keep food down and therefore has a bit more energy.
Just checked into a moped scooter and they get up to 60miles per gallon which might be a bit better then what you are currently getting....but the tank only holds 3 gallons. Depending on how far the hospital is you might want to give this a thought :-)
dawn
To all that read this in Columbus:
We are having a cookout on Sunday, 4pm. Just wanted to invite everyone. We'll provide the food and fun,just bring your beverage of choice. I can forward you directions if you haven't been here yet! Don't mapquest, it will give you the wrong directions.
Stacy
Neal has always wanted a moped. If I told him that he would jump on it in a second! I actually enjoy riding them as well, but am not that big of a risk taker!
Jim - thank you for your offering of advice...we just might take you up on that! Ryan and I are totally clueless as well but, come October, we will have no choice but to learn by DOING (and I'm sure there will never be a dull moment!!!) I hope that baby Jack is doing well - thanks again:)
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